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Epilepsy12 and OPEN UK national conference resources

Each year, Epilepsy12 and OPEN UK host an annual conference to bring together experienced healthcare professionals and discuss improving paediatric epilepsy care. The conferences have been a mix of virtual and face-to-face events, and have presented a mix of workshops and symposia aimed at health pr...
Neurology
Epilepsy
Document

COVID-19 &Us - views from Â鶹´«Ã½ &Us

Â鶹´«Ã½ &Us worked with with young people to reflect on their experiences of COVID-19 and the lockdown. This helped inform future planning for times of national crisis such as a natural disaster, another pandemic, terrorist incident or other cause of nationwide disruption.
Mental health
COVID-19
Engaging children and young people
Children and young people's voice
Â鶹´«Ã½ &Us
Patient experience
Adolescent health
Wellbeing for children and young people
Document

BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
BPSU
Conditions
Rare disease
Engaging children and young people
Children and young people's voice
Patient experience
Patient involvement
Research